Eric Dane Urges Reauthorization of ACT for ALS
Eric Dane Urges Reauthorization of ACT for ALS

Eric Dane Urges Reauthorization of ACT for ALS

News summary

Eric Dane, 52, went public with an ALS diagnosis in April 2025 and has become a vocal advocate for more research and patient access while being seen using a wheelchair. He traveled to Washington, D.C., with the nonprofit I AM ALS to press lawmakers to reauthorize the Accelerating Access to Critical Therapies (ACT) for ALS Act, which is set to expire in 2026. Dane met with Rep. Eric Swalwell and other members of Congress, saying slow, delayed diagnoses often bar people from clinical trials and praising ACT for broadening early access to experimental treatments. He is campaigning for increased federal research funding and broader trial access and has joined the Push for Progress effort to accelerate ALS research. Dane has vowed to "fight to the last breath" to be there for his two daughters and has asked for privacy as his family navigates the disease.

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